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ADA Live! Episode 60: Supported Decision-Making (SDM) and Conservatorship

1:00 pm EDT September 05, 2018   |   Organized by: Southeast ADA Center

Description

Under Article 12 of the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD), people with disabilities enjoy legal capacity — the capacity for rights and capacity to act — on an equal basis with others in all aspects of life. Supported Decision-Making (SDM) is a framework that supports this right and helps individuals with disabilities make choices about their own lives with support from a team of people. Supported Decision-Making is an alternative to guardianship.

In this episode, thought leaders Peter Blanck, Ph.D., J.D. and Jonathan Martinis, Esq., J.D. of the Burton Blatt Institute (BBI) at Syracuse University, will discuss recent court cases where rights were restored and Supported Decision-Making teams were established.

Featured Organization(s):

The National Resource Center for Supported Decision-Making (NRC-SDM) 

The National Resource Center for Supported Decision-Making (NRC-SDM) builds on and extends the work of Quality Trust's Jenny Hatch Justice Project by bringing together vast and varied partners to ensure that input is obtained from all relevant stakeholder groups including older adults, people with intellectual and developmental disabilities (I/DD), family members, advocates, professionals and providers. The NRC-SDM partners bring nationally recognized expertise and leadership on SDM, representing the interests of and receiving input from thousands of older adults and people with I/DD. They have applied SDM in groundbreaking legal cases, developed evidence-based outcome measures, successfully advocated for changes in law, policy and practice to increase self-determination and demonstrated SDM to be a valid, less-restrictive alternative to guardianship. Find out more by going to: www.supporteddecisionmaking.org




Jonathan Martinis

Jonathan Martinis, is the Senior Director for Law and Policy, Burton Blatt Institute and the Project Director, National Resource Center for Supported Decision-Making.Mr. Martinis has over 20 years' experience representing and advocating for people with disabilities to ensure that they receive the services and supports they need and want to live full, meaningful, and community integrated lives.

In 2013, Martinis represented Jenny Hatch in the nationally acclaimed "Justice for Jenny" case, helping Ms. Hatch secure her right to live where and how she wants, to make her own decisions, and direct her own life. Jenny’s case was the first trial to hold that a person with disabilities has a right to engage in “Supported-Decision Making,” where people work with trusted friends, family members, and professionals to help them understand the situations and choices they face, so they may make their own decisions – rather than be subjected to a unnecessary permanent, plenary or full guardianship. The “Justice for Jenny” decision is hailed nationally and internationally for the principle that “an individual's right to choose how to live and the government’s progress in providing the help needed to integrate even those with the most profound need’s into the community” is a right guaranteed under law.

Since the Hatch legal decision, Jonathan has presented to and trained thousands of individuals, families, advocates, attorney, professionals, and service providers about everyone’s Right to Make Choices and direct their own lives, while receiving the services and supports they need to do so. He currently serves as the co-Project Director of the National Resource Center for Supported Decision-Making led by the Quality Trust for Individuals with Disabilities.

Martinis will be based at BBI’s Washington DC office, and he will lead BBI’s national and international efforts to ensure that older adults and people with disabilities receive appropriate supports and services, including Supported Decision-Making, to lead inclusive, independent, and self-determined lives.

Peter Blanck

University Professor and Chairman, Burton Blatt Institute at Syracuse University

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